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Medical Archives
Periodical of AVICENA, d.o.o., Sarajevo
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ISSN: 0350-199X (Print)
ISSN: 1986-5961 (Online)
Language: [ English ]  
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Open Access

Review Article



Avoiding Parental Distress When Discussing About Sudep: the Albanian Experience

Jera Kruja, Gentian Vyshka.

Cited by (1)

Abstract
Introduction: Pediatric SUDEP (Sudden Unexpected Death in Epilepsy) is an uncommon event, but its unpredictability has rendered the issue very important to be addressed, under all points of view: medical, moral and legal one. The death of a child has been always considered a dramatic event for the Albanian families, and when it overcomes unexpectedly the emotional reactions might even be more exaggerated. Discussion: Debates about truth-telling on the prognosis, or even on the probability of a sudden death related to the main diagnosis (epilepsy) are old and controversial. Risk factors for SUDEP have been formulated and strategies to confront them have been put in place; however medical (pharmacological) compliance seems by large the most important protective factor. Conclusion: To our opinion, disclosing the risk of a sudden death to the family on a child suffering from epilepsy is a necessary act; timing and ways of disclosure are details that need to be refined case-by-case, in a situation where a general consensus or guidelines are lacking. A step-by-step approach and a gradual informing are helpful and psychologically acceptable from the parents or other relatives.

Key words: SUDEP, epilepsy, truth-telling, seizure, psychological burden.



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This Article Cited By the following articles

Increasing awareness of sudden unexpected death in epilepsy
Expert Rev Neurotherapeutics 2013; 13(12): 1371.

1
 

How to Cite this Article
Pubmed Style

Kruja J, Vyshka G. Avoiding Parental Distress When Discussing About Sudep: the Albanian Experience. Med Arh. 2012; 66(3): 201-203. doi:10.5455/medarh.2012.66.201-203



Web Style

Kruja J, Vyshka G. Avoiding Parental Distress When Discussing About Sudep: the Albanian Experience. www.scopemed.org/?mno=19818 [Access: September 19, 2014]. doi:10.5455/medarh.2012.66.201-203



AMA (American Medical Association) Style

Kruja J, Vyshka G. Avoiding Parental Distress When Discussing About Sudep: the Albanian Experience. Med Arh. 2012; 66(3): 201-203. doi:10.5455/medarh.2012.66.201-203



Vancouver/ICMJE Style

Kruja J, Vyshka G. Avoiding Parental Distress When Discussing About Sudep: the Albanian Experience. Med Arh. (2012), [cited September 19, 2014]; 66(3): 201-203. doi:10.5455/medarh.2012.66.201-203



Harvard Style

Kruja, J. & Vyshka, G. (2012) Avoiding Parental Distress When Discussing About Sudep: the Albanian Experience. Med Arh, 66 (3), 201-203. doi:10.5455/medarh.2012.66.201-203



Turabian Style

Kruja, Jera, and Gentian Vyshka. 2012. Avoiding Parental Distress When Discussing About Sudep: the Albanian Experience. Medical Archives, 66 (3), 201-203. doi:10.5455/medarh.2012.66.201-203



Chicago Style

Kruja, Jera, and Gentian Vyshka. "Avoiding Parental Distress When Discussing About Sudep: the Albanian Experience." Medical Archives 66 (2012), 201-203. doi:10.5455/medarh.2012.66.201-203



MLA (The Modern Language Association) Style

Kruja, Jera, and Gentian Vyshka. "Avoiding Parental Distress When Discussing About Sudep: the Albanian Experience." Medical Archives 66.3 (2012), 201-203. Print. doi:10.5455/medarh.2012.66.201-203



APA (American Psychological Association) Style

Kruja, J. & Vyshka, G. (2012) Avoiding Parental Distress When Discussing About Sudep: the Albanian Experience. Medical Archives, 66 (3), 201-203. doi:10.5455/medarh.2012.66.201-203



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